Catalyst Convos | Ep. 7
A Biker's Unexpected Mission: Bringing Adventure to Rare Disease Kids
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Jeff “Riot,” Founder of Mile Monsters Inc., shares how his organization helps children with Duchenne create memories, build confidence, and enjoy new adventures.
Catalyst Convos | Ep. 6
Building a Future for Adults in the Duchenne Community
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Marissa shares how Team Joseph is supporting young adults with Duchenne as they shape their own futures, beyond the clinic and into adulthood.
Catalyst Convos | Ep. 5
Fatherhood and Caring in Rare Disease Families
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Fathers Mark and Bill share their caregiving journeys and what it means to support rare disease families with strength, space, and vulnerability.
Catalyst Convos | Ep. 4
The Courage to Ask for Help in Rare Disease
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Dr. Maya and Jessica share how social workers support rare disease families through care transitions, advocacy, and psychosocial support.
Catalyst Convos | Ep. 3
Bridging the Gap: Rural Healthcare Access in Rare Disease
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Darby and Terri share real strategies to improve rural access to rare disease care through data, trust-building, and cultural outreach.
Catalyst Convos | Ep. 2
Overcoming Healthcare Hurdles: Inspiring Stories
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Guest Laura and Desiree share their resilience amidst the unique challenges faced by the Hispanic community regarding rare diseases and epilepsy.
“Empowerment is very important to me because it allows me and my colleagues to do what we need to do to make sure that patients are getting what they need.”
—Kay Shafeek, Revenue, Pricing, and Government Programs
